June 16, 2024
Learn what celiac disease feels like, from a personal and medical perspective in this article. Understand the impact on daily life and emotional toll it takes on those living with it, as well as the difference between gluten intolerance and celiac disease and the importance of getting a proper diagnosis for proper management.


Celiac Disease is a digestive condition triggered by the consumption of gluten, which is found in wheat, barley, and rye. It is a lifelong autoimmune disorder that can cause a range of symptoms and complications if left untreated. In this article, we will explore what celiac disease feels like, from a personal and medical perspective, including its impact on daily life and the emotional toll it can take on those who suffer from it. This article is aimed at anyone who is curious about celiac disease, those who may suspect they have it, or those who want to learn more about supporting loved ones living with the condition.

Personal Account

Imagine having constant stomach pains, fatigue, and joint pain daily, to the point where you cannot even leave the house. This was Emily’s experience until about five years ago when she was diagnosed with celiac disease. Initially, she suspected it might have been IBS, but tests revealed that she had celiac disease – and it had gone undiagnosed for years. Emily had gluten-free options always available – cakes, breads, and pizza, among others – but having lived with celiac disease, she knows how tough it can be for someone who is diagnosed and has to change their life because of it.

Medical Perspective

Celiac disease impacts the digestive system by making it unable to handle gluten, which is a protein found in wheat, rye & barley. When gluten is consumed, the body launches an autoimmune response and damages the lining of the small intestine, resulting in a decrease in nutrient absorption and nutrient deficiencies. Over time, the decreased absorption of nutrients can lead to potential osteoporosis, infertility, neurological problems, and other complications if not managed properly.

Impacts on Daily Life

Celiac disease often requires a strict gluten-free diet which can have an impact on daily life. It can be challenging to find gluten-free options when dining out with friends, attending events, or traveling. As gluten can hide in unexpected foods, individuals with celiac disease need to pay close attention to food labels and be mindful of cross-contamination to avoid health risks. Additionally, the symptoms of celiac disease often interfere with daily activities and can cause individuals to feel constantly fatigued or in pain. Adopting a new diet, managing symptoms and reducing stress can help with symptom management and enhance day-to-day life.

Emotional Impacts

The emotional impact of living with celiac disease should never be ignored. It can be challenging to maintain relationships or to interact in social settings when dining with non-gluten-free individuals. The frustration of disease management, especially early on, and the limitations of the diet can lead to high levels of stress and social isolation. Finding a supportive community and practicing self-care can assist in managing the emotional toll of celiac disease. Online support groups can offer emotional support and advice to individuals diagnosed with celiac disease.

Differences From Gluten Intolerance

There is a difference between celiac disease and gluten intolerance. Gluten intolerance is a sensitivity to gluten that can cause similar symptoms – bloating, headaches, and fatigue. But it doesn’t involve an autoimmune response and doesn’t come with the same risk of long-term damage. While a gluten-free diet can alleviate symptoms of both gluten intolerance and celiac disease, individuals with celiac disease need to strictly follow a gluten-free diet to avoid complications and risk to their health in the long term.

Diagnosing Celiac Disease

Since celiac disease shares many symptoms with other gastrointestinal disorders, it can often go undiagnosed or misdiagnosed. However, the process to diagnose celiac disease is straightforward. A blood test measures the level of antibodies, and if it is positive, a biopsy may be required to check for intestinal damage. The only way to manage celiac disease is through a lifelong commitment to a strict gluten-free diet. It is essential to work with a medical professional to get a proper diagnosis, treatment plan, and follow-up plan to monitor any potential long-term complications.


Celiac disease is a serious autoimmune disorder that can have a significant impact on daily life for those affected. It is important to know that there is a difference between gluten intolerance and celiac disease and to seek proper medical advice If any symptoms are noticed. A proper diagnosis can help manage the symptoms and avoid long-term complications. The support of loved ones and connecting with a community of others living with the condition can make a world of difference both emotionally and practically.

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